Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.
![](https://cdn.prod.website-files.com/64384d0974e38f91b99bc084/65cd1f2e4974c96f9e1622d1_92717346_132932268303187_2338056019847938048_n.jpg)
December 14, 2023
“I don’t have time for the usual teenage things. That’s all small stuff, anyway!”
Patient + Caregiver
![](https://cdn.prod.website-files.com/64384d0974e38f91b99bc084/669ed5b0b006d0ee566270c0_Paige%20and%20Kevin.jpg)
November 27, 2023
“He is the Dad I wish I could give everyone on the planet.”
Caregivers
Professionals
![](https://cdn.prod.website-files.com/64384d0974e38f91b99bc084/6512f4834844487ad0f33b3e_Main%20Images%20for%20website%20(3).png)
May 23, 2023
“You have two choices: be in the ground, or live as much of this life as you can”
Patients